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Hey everyone, last I left you, we were still talking about my Chiari malformation/tethered cord being the latest theory about what was causing my legs to hurt. After seeing the neurologist and the neurosurgeon again, they have said unequivocally my spine is not the problem. Thankfully, no surgery, even though my brain and my spine are both pretty jacked up, they're 100% not the reason my legs continue to hurt, so we continue on. I've seen a pain management doctor since and I'

Paul left out two of the best parts of the urine jug story. Have to share to bring some additional humor to this shit show. (Or piss show.) For context if you didn’t read Paul’s last blog post… he has to collect his urine in a jug at home over a 24 hour period for testing. He does his first collection in our upstairs bathroom. He did not realize the jug had a slow leak in it. Puts it on the bathroom counter before bringing it downstairs, still unaware of the leak. I wake up,

Just wanted to give a way overdue update to you all. Definitely been a couple of frustrating months since the liver embolizations. Although those procedures were pretty successful, the constant pain and issues with my legs have not gone away. This has been going on for almost a year now and I've seen every possible doctor you can think of: - rheumatologist - vascular - neurologist - neurosurgeon - orthopedic surgeon - etc. For a brief while they thought the issues were stemmi