The rollercoaster ride continues

Hey everyone, last I left you, we were still talking about my Chiari malformation/tethered cord being the latest theory about what was causing my legs to hurt. After seeing the neurologist and the neurosurgeon again, they have said unequivocally my spine is not the problem. Thankfully, no surgery, even though my brain and my spine are both pretty jacked up, they're 100% not the reason my legs continue to hurt, so we continue on.

I've seen a pain management doctor since and I've been trying some meds as a band-aid to get my legs under control so I can try to live a normal life. The oncologist and radiologist both are still happy with the post-embolization results, so that's a positive. Just had my three-month CT scan, and nothing new is growing or increasing at the moment, so again that's a super positive. I am going to continue trying to figure out what the hell is making my legs hurt so bad, but I wanted to make sure I gave you all an update on where we're at now.

Will keep you all posted!