Day 17 🤕

What a slow and rollercoaster-y recovery of ups and downs. Very minimal ‘ups,’ if you can even call them that.

I’ve never seen him have to try so hard to put on his poker face. This one is definitely taking a physical and emotional toll on him. He said he has literally never felt this physically and mentally awful in his life. (For those of you who know what he's been through in the past, that is saying a lot .) He expressed that unless this round of procedures proves to provide a significant stunt in disease progression and symptoms, he will never, ever do this again. He would rather have less time than spend his life going through this hell 🥺.

He’s thankfully no longer in severe/debilitating pain 🙏🏻, but still in moderate pain around the clock. It's draining the life out of him. So fatigued. Falling asleep at random times of the day for hours at a time, completely zapped of energy. Sleeping now.

He left the house a few times this past week, but ends up back home quickly. I’m hoping and optimistic that he will gain the momentum and energy to do a few things this week that he’s been REALLY looking forward to 🤞🏻. 

Not sure how he’s going to repeat this procedure again in 10 days. Not even sure they will be able to move forward on schedule if he’s still feeling this bad? Will know more this week. Tomorrow he gets his post-op scans to find out if this torture was worth it 🙏🏻. Hoping by this time Tuesday, we’ll be updating the blog with some positive news🤞🏻!

Sorry for the downer-ish update. It’s just reality right now. But we'll bounce back!

Dayna 🩷

P.S. I’m obsessed with my sloth Hugimal Paul gave me. (Adorable weighted stuffed animal.) Also seems fitting for this sloth-speed recovery 🤔.

P.S. I’m obsessed with my sloth Hugimal Paul gave me. (Adorable weighted stuffed animal.) Also seems fitting for this sloth-speed recovery 🤔.