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Not-so-great update

  • 41 minutes ago
  • 1 min read

Well……today could have been better lol. Not the results I was hoping for but then again it’s me we are talking about. Other then catching guitar pics at a rock show like I’m Henrik fn Lundqvist my luck is pure shite lol. So over this to be honest.


Super quick recap while we sort ourselves:


• Multiple new liver masses (2 or 3 minimum it sounds like). 


• One of them is pretty large (about 2 inches x 1 inch). — This is quite a big growth in only a 3 month period, especially since this cancer is usually so slow-growing… pretty worrisome.


• Liver enzymes (bloodwork) were higher today than they have ever been, too. Some almost doubled since May. 


• Don’t have appointment to discuss with oncologist until Friday, but we messaged them asking if it’s possible to speak with them sooner, as we’re clearly a bit panicked.


Will update as soon as we have more info.


This sucks 🥹 - as much as my AI cancer image lol

 
 
 

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IMPORTANT DISCLAIMER : We are not doctors. We are just normal, everyday people who are sharing what we’ve experienced, in hopes it might help someone else. Nothing in this blog, or anywhere on this website, should be substituted for professional medical advice. Perform your own fact-checks, make sure to conduct your own research, and consult with the best doctors you can find. It’s also INCREDIBLY important to note that no two NET Cancers are the same, and just because something did or did not happen to Paul, or does or does not work for Paul, doesn’t mean it will or will not work/happen the same way for someone else. Everyone is their own unique case, and every body responds differently to the cancer itself, as well as to the treatments. If you have a NET, please do NOT jump to conclusions based on Paul’s story. We’ve read many stories like Paul’s, but we’ve also read many miracle stories. We strongly encourage you to take this blog as an individual case study, and not as a prognosis for your own health.

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