Looking ahead.......

Hey all..... PB here. Figured it was time for another update since I haven't surfaced after the 2nd Liver embo. Well, it sucked ;). It was just as painful as the first round but thankfully the pain did not last nearly as long. The fatigue and flu like feeling is still hanging around but im managing life around it where I can. My legs are still killing me all the time but that is another issue I am still working through with my care team. I have scans in 2 weeks just to check my liver again and see how things are doing after both procedures. The last scan (post initial embo) showed great results and tissue death etc. We can assume that this next scan will show the same and that both procedures worked great.

What does this all mean????? It should mean that I can have a break from treatment and procedures for at least the next year! This would be amazing. I have had so many tests, procedures, looming procedures, failing organs, etc for what feels like 2 years now. It has been really difficult to live a somewhat normal life which is something that I need badly. I've been walking around and acting like there is nothing wrong for too long but failing at it badly lol. I look pretty good most days and most of you who have seen me in the wild would agree that you cannot tell things are wrong...... well..... I should win an Oscar for that shit because it isn't lol. Poor Dayna is the one who has to see me crash, struggle to get out bed, bathroom, etc. I am not sharing this for sympathy (f that) rather just sharing the reality of what life has been like. Im praying we figure out the pain/fatigue in my legs soon because that would make life feel so much more normal. Can almost fight through the other symptoms most of the time....

Looking forward...... I should be at the tail end of this recovery and gaining more strength and energy over the next few weeks. I have already thrown myself super hard back into work (too hard too fast of course....just my style). I am paying for it physically, but that will pass. Not having any procedures scheduled and dealing with the mental part of that is allowing me to focus on things in a way I have not been able to do for months.... Feels good. There is a lot I want to get done and dont have time for my bs disease to stop me..... Fingers and toes crossed that things stay this way for as long as possible! I know none of this is a cure but if I can ride the mental momentum of the next year of potential freedom I will take it!

I will update you all after my next scan feb 17th and if anything else comes up. As always, thank you all for the support, the prayers, and the leaving me alone when I need it. Love and appreciate you all! ** adding a photo of me with a new pair of speakers at the office. Real smiles when I get to play with audio gear ;)