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bochnerblog
Living with Stage IV Neuroendocrine Cancer
bochnerblog

A brutally honest, personal look at living with an incurable, rare, Stage IV cancer — sharing updates, treatments, setbacks, hope and a splash of humor.
See below for most recent updates.
On a lifelong road of repeated surgeries, procedures, scans and treatments 🖤


Paul's Y'alls
Anyone else concerned about Paul’s sudden use of the word “y’all” in his posts? We’ve been together for 23 years and I have never heard...
Feb 4, 2024


Ready for phase 1
Sorry its been a while..... been waiting to have enough to share with ya'll. First.... treatment side effects seem to have lessened...
Feb 2, 2024


Dont crash the coffee? (or the tumors)
I have always LOVED this statement. Any of my moto family who has taken or know the guys at YCRS (Yamaha Champions Riding School) know...
Jan 20, 2024


The questions you want to ask...
Some of our friends and family have asked these questions. I figured I would share here for those of you who may want to know, but don’t...
Jan 18, 2024


Anyone have a crystal ball we can borrow?
We met with a bunch more docs this week. We could really use a crystal ball right about now. NET LIVER SURGEONS #3 + #4 Both are NET...
Jan 13, 2024


Holy Mind F*ckery 🤯
Oh my what a mind fuck this all is. But a good mind fuck, because we are learning more every day, and it’s forcing us to take a pause,...
Jan 4, 2024


Knowledge is.......
Power......... nah....its BS.... Knowing what you are dealing with is def powerful. I feel like D and I have done so much research and...
Dec 21, 2023


It's not my fault im a dick.....
We can all rest easy now knowing that my tumors are at fault for me being such an ahole.... Ive been telling Dayna for years that I...
Dec 15, 2023


Anyone up for a quickie?
Sorry. Not the exciting kind. Just a super quick logistical update for those of you waiting to hear... We saw the medical oncologist...
Dec 14, 2023


Nice Jugs......
For my pee you savages!!!! Last 24 hours I have been peeing into these jugs... (seriously get your head out of the gutter).. I'm told...
Dec 12, 2023


"Get in there nice and deep like"
Non-Doctor Dayna here with an unsolicited but hopefully helpful PSA: The terminal ileum is where Paul’s cancer started. (A part of the...
Dec 11, 2023


Silver linings post doc visit
Well...... If I never went to the hospital for my back last month I would likely have been dead in 2 or so years (we learned this...
Dec 8, 2023


Genetics + NETs
My usual level of humor has taken quite a hit recently. So I'm posting the factual and informative stuff in the interim until my humor...
Dec 7, 2023


Waiting..........
What a great movie! Just waiting is prob the worst part of this whole thing. Constantly refreshing the MSK app for test/lab results,...
Dec 7, 2023


The scans are in (i need new shorts)
Just got the Dotatate PET scans and have been obsessing over them.... Basically anything that you see like a sunburst is a tumor...... ...
Dec 5, 2023


In English-ish Update
Hi everyone. Just trying to capture the most recent details “in english” … kinda 🙃. Of course, this might change as we find out more....
Dec 5, 2023


Liver Biopsy done / PET
We’re in recovery room from biopsy. PET results came in. Liver definitely sucks (confirmed cancer in a decent amount of places), small...
Dec 5, 2023


Dotatate Pet Scan - I did not get super powers....
Friday I had a nuclear PET/CT with Dotatate..... The 68Ga-DOTATATE PET/CT scan is a new generation of scan that offers improved...
Dec 4, 2023


How did I find out?
By pure luck (well, not really) .... but I did have symptoms I didn't realize. My spine is such an asshole that it landed me in the ER....
Dec 4, 2023


Deep thoughts
Liver mass biopsy tomorrow. Wondering what percentage of these masses are Tito's based 🤔 Joking aside, Just want to clarify that the...
Dec 4, 2023


Getting this blog started......
I really hate doing this here, but it truly does seem to be the absolute easiest way to inform everyone. We’re incredibly overwhelmed,...
Dec 3, 2023
Paul's Progress - F'n Tumors
As you likely already know, we've received the shocking, upsetting and unexpected news that Paul has cancer. I've decided to start this...
Dec 3, 2023
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