top of page

Waiting..........

  • Dec 7, 2023
  • 1 min read

What a great movie!


Just waiting is prob the worst part of this whole thing. Constantly refreshing the MSK app for test/lab results, messages etc. I LOVE that there is an app..... but boy what a new and unexpected obsession it has created. Dayna and I both are wearing the skin off our fingers. Refresh, ,refresh, refresh...... lol.


Hoping the Liver biopsy results come in before we see the liver surgeon tomorrow. Would love him to be in a position to tell us what my options are. Can anything be done surgically to remove the sack of rocks in my liver? If not wha's the plan? Ablation, radiation, what? Do I have to give up Scotch and Titos? Boy this is getting scarier by the moment LOL. I'm also hoping he will be able to tell me if these devil rocks were visible on my scans from 2021. it wont change anything, but it would help me stop obsessing over it.......


Waiting impatiently...... PB


 
 
 

Recent Posts

See All
Uncertainty ahead

We met with both the Medical Oncologist and Interventional Radiologist today. The cancer within the liver indeed shows progression, as expected from recent results 😔. How much (or hopefully how littl

 
 
 

3 Comments

Tara M Henningsen
Tara M Henningsen
Dec 07, 2023

I thought radiation wasn’t an option?

Like
Dayna Reilly
Dayna Reilly
Dec 07, 2023
Replying to

We've heard mixed things on this one. I feel like every appointment we have and test result we get, something changes. 🤯. Initially we were told embolization or ablation, along with Octretotide, would likely be the best option, but that was before we had the PET-CT results. (Chemo pretty certianly is a 'no.') We should know tomorrow for sure if radiation is on the table, and we'll update. xo.


Like

Subscribe for updates

IMPORTANT DISCLAIMER : We are not doctors. We are just normal, everyday people who are sharing what we’ve experienced, in hopes it might help someone else. Nothing in this blog, or anywhere on this website, should be substituted for professional medical advice. Perform your own fact-checks, make sure to conduct your own research, and consult with the best doctors you can find. It’s also INCREDIBLY important to note that no two NET Cancers are the same, and just because something did or did not happen to Paul, or does or does not work for Paul, doesn’t mean it will or will not work/happen the same way for someone else. Everyone is their own unique case, and every body responds differently to the cancer itself, as well as to the treatments. If you have a NET, please do NOT jump to conclusions based on Paul’s story. We’ve read many stories like Paul’s, but we’ve also read many miracle stories. We strongly encourage you to take this blog as an individual case study, and not as a prognosis for your own health.

bottom of page